Driving research of Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME / CFS),
Post Treatment Lyme Disease Syndrome (PTLDS), Fibromyalgia and Long Covid

SPOT ME: Serial Pediatric Omics Tracking for ME/CFS

  • IRB/clinical protocol completed and approved.
  • Recruitment has begun at the Royal Children’s Hospital in Melbourne.
  • Exploring incorporation of long-COVID patients.
  • Exploring incorporation of proteomics.
  • Exploring the expansion of age intervals to include young adults.

STUDY HYPOTHESIS AND DESCRIPTION

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is diagnosed by its symptoms, which include post-exertional malaise, fatigue, sleep disturbance, pain and cognitive impairment.  Currently, there is no biomarker for diagnosis, and it is unclear how symptoms arise to create this chronic pathological state. Research into potential disease mechanisms in adolescents with ME/CFS is severely limited, despite adolescence representing a major age peak in the incidence of ME/CFS.

The outcomes of this project are to discover novel metabolic biomarkers in ME/CFS, link metabolism to the fluctuation of symptoms, determine mitochondrial function in ME/CFS, and produce a plethora of new knowledge for the field of ME/CFS.

OBJECTIVES

Paediatric ME/CFS patients from the Royal Children’s Hospital’s Paediatric ME/CFS Clinic will be invited to participate in our study. We would first collect a blood sample and urine sample in conjunction with a symptom survey, questionnaire, and cognitive assessment. We would then engage consenting participants in a longitudinal study with wearable health technology while collecting urine and blood microsamples from patients over time.

OMF Australia accepts donations of Cryptocurrencies

Make the most of your donation by donating your Bitcoin, Ethereum, and other cryptocurrencies directly to OMF Australia rather than selling and donating the after-tax proceeds.

  • Your tax deduction will be equal to the fair market value of the donated cryptocurrency (as determined by a qualified appraisal).
  • Donors should consult with a tax advisor for properly recording this donation on a personal tax return.

OMF Australia can accept cryptocurrency donations of any amount. 

Donating cryptocurrency is a non-taxable event, meaning you do not owe capital gains tax on the appreciated amount and can deduct it on your taxes. This makes Bitcoin and other cryptocurrency donations one of the most tax-efficient ways to support your favorite cause. If you want to learn more about how donating crypto can lower your taxes, check out thegivingblock.com/faq.

Talk to a crypto-savvy tax professional or connect with The Giving Block to get connected with one.

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